100 international and national researchers, users and therapists were invited to the user involvement conference, CODIAC (Copenhagen Diabetes Consensus) in the autumn of 2021, where these issues were discussed.
The purpose of the conference was to strengthen knowledge about approaches to user involvement both nationally and internationally, and to establish new collaborative environments for knowledge sharing and development of "best practice". In addition, the ambition was to focus on treatment, prevention and research in the field of diabetes.
Preparation for the conference
Before the conference, the current knowledge in the field was mapped through literature review, where almost 100 reviews were shortlisted and subjected to a more thorough analysis. A prioritization exercise - based on the method "Group Concept Mapping" - in which 195 national and international health professionals, users and researchers participated, also helped to identify what is important and valuable in user involvement.
The results were presented on the first day of the conference and were live-streamed.
The structure and content of the conference
The conference was structured as a three-stage rocket:
- The start was about presenting the knowledge we have about the value and impact of user involvement.
- Next, the discussion focused on identifying gaps we have in our knowledge.
- Thirdly, a number of collaborative projects were developed aimed at filling in the gaps identified by the conference.
The conference was held as a hybrid conference, where just over half of the participants were gathered in Copenhagen, while the others participated virtually. Both the planning and the conference itself were characterized by close collaboration between users, professionals, researchers and decision-makers.
Next step after the conference
The last action-oriented part of the conference resulted in a number of joint collaboration initiatives within 8 categories, which for example focus on "Vulnerable citizens and user involvement", "Technology and social media" and "The family as a focus for user involvement". Find a description of all the initiatives on the conference website.
All participants from the conference subsequently have the opportunity to bid on the initiatives within the 8 categories. New ideas for new initiatives are welcome, also by people who did not have the opportunity to participate in the conference, have the opportunity to register - either by writing to the contact person of the initiative in question or by sending an email to firstname.lastname@example.org
(or to Bjarne.email@example.com
Finally, a final document (a "white paper") is in preparation. This paper summarizes the results and recommendations to researchers, professionals, decision makers and users, and will be published during the spring of 2022 along with a number of other articles from the literature work prior to the conference.
The overall purpose of the Copenhagen Diabetes Consensus (CODIAC) is to summarize, disseminate and further develop the existing international, research-based knowledge about the value and impact of a user-involving approach within diabetes treatment, prevention and research.The purpose of the conference is to strengthen knowledge about approaches to user involvement both nationally and internationally and to establish collaborative environments for knowledge sharing and the development of best practice.
The conference was supported by the Novo Nordisk Foundation and has been created in collaboration with: Steno Diabetes Center Nordjylland, Steno Diabetes Center Odense, Steno Diabetes Center Aarhus, Steno Diabetes Center Sjælland, Diabetesforeningen and Knowledgecenter for Diabetes.
Source: The conference website
Contact the CODIAC Secretariat
Phone +45 20 34 04 53