Research area
- Patient and public involvement in research: What er the barriers to collaborations between researchers and people with diabetes? How do the parties overcome the barriers?
- Theory, metaphor, or buzzword? What are so-called “barriers” to patient and public involvement in research?
- Space for patient and public involvement: What are (im)possible collaborations for researchers and citizens where and when they collaborate? And why?
Current research
Behind, beyond, and more on barriers for patient and public involvement in research: Patient and public involvement in research is spreading to more research fields. As an ideal and sometimes as a requirement.
Concurrently, researchers talk about barriers to their collaboration with citizens.
My PhD begins with this contradiction between the proliferation of engaging research approaches and the experiences that something is in the way.
The purpose is to construct a more secure foundation for how we research and tackle barriers to involvement. Also, I want to undermine static barrier thinking.
I do this, first, through literature studies, where I question and make suggestions for research into patient and public involvement.
Secondly, I interview researchers and people with diabetes about the barriers they experience: What do they understand by barriers? How do they deal with barriers? And what can we learn from them?
Thirdly, I look at patient and public involvement across research disciplines. Likely, knowledge ideals, methods and physical surroundings shape the way involvement unfolds. One may have to move outside one’s own field to notice that.
The project is in collaboration with the Department of Public Health at the University of Copenhagen and the Natural History Museum of Denmark.
Scientific publications