Aims and purpose
Half of all type 1 diabetes cases are diagnosed in adulthood, however, little is known about how adults experience and adapt to the disease in the early stages. The fact that many people with diabetes do not achieve adequate control over their diabetes in the long term and experience high levels of psychosocial distress, suggests that adapting to diabetes is challenging. We need to explore the care needs of adults with new onset type 1 diabetes and develop strategies to facilitate early positive adaptation to diabetes to improve long term outcomes in this population.
The aim of the study is to explore the influence of bio-psycho-social phenomena on the process of adapting to a life with diabetes. This knowledge will inform a new framework for a supportive programme of care at diagnosis of type 1 diabetes in adulthood.
Design and method
In this qualitative study 30 people diagnosed with type 1 diabetes within the past three years and aged ≥18 years at the time of their diagnosis will each participate in two semi-structured interviews with a six month interval. The qualitative findings will be utilised in participatory workshops with patients and health care professionals to develop a framework for a supportive programme of care.
Adults diagnosed with type 1 diabetes within the past three years and aged ≥18 years at the time of their diagnosis and health care professionals who take care of this group of people with diabetes.
Expected ending and outcome
The study is expected to provide a better understanding of people with diabetes’ views and experiences at the time of their diagnosis and in the early phase of the disease. This new knowledge will help to identify phenomena influencing the process of adaptation. The findings will be incorporated in a framework for a supportive intervention.
The study is undertaken in collaboration between two diabetes clinics in the UK (King’s College Hospital and Guy’s and St Thomas’ hospital) and three diabetes clinics in Denmark (Steno Diabetes Centre, Endokrinologisk Klinik Rigshospitalet, and Hillerød Hospital).
The study is partly funded by Foundation of European Nurses in Diabetes (FEND).